"Medical Mystery"
I was sent to Barnes Hospital in St. Louis after being seen by several doctors. The symptoms pointed to ovarian cancer, rhuematic fever and congestive heart failure and West Nile disease. Day after day I visited doctor after doctor until I went to Barnes Hospital in the middle of the night. I was admitted but my insurance was not notified, and I spent a total of 14 hours in a patient bed. During that 14 hours the only thing tested was my blood (or so I thought). At the end of the 14 hours the doctor on staff came in to tell me that my weight gain of 22 pounds in one month was due to anxiety and that I was a “medical mystery”; I was discharged. About 20 minutes after the discharge, a tech came in to take blood and I asked why because I was going home.. she told me that the first blood samples were lost and she was there to take a second sample. All in all I spent 14 hours and $1,226 for not notifying my insurance company; there were essentially no tests completed because the blood samples were lost and I was sent home with the idea that anxiety had caused my rapid weight gain, 18 hours of sleep every day and diarreah. Once my OB/GYN at Memorial Hospital at Belleville, Il received the report from Barnes, he decided to do additional texts. Wa-la! I have Celiac Disease; it wasn’t anxiety at all. I feel it’s a shame that people like myself go to the hospital in the middle of the night and have to foot the bill for very substandard care with no intelligent diagnosis given.
Comment By: Kris Hall
Date & Time: June 18, 2010 at 4:36 pm
We're sorry your experience didn't meet your expectations. Please contact Guest and Patient Services at 314-362-5196, and a patient advocate will be happy to assist you.
Comment By: Stacey Reeves
Date & Time: June 20, 2010 at 10:25 am
Saying your sorry that the hospital did not meet expectations sounds like you are saying the problem is with the expectations, and who wants to contact a patient advocate-whatever that is.
Comment By: Tiffany Sewell
Date & Time: June 21, 2010 at 9:11 am
Stacey – I'm not sure how "we're sorry" and "please contact us so we can assist you" equals finding fault with the expectations? What more do you want?
A patient advocate serves as a liason between the patient and the hospital, providing a single "point person," if you will, for a patient to ask questions. It's a great service that's not available at all hospitals, but BJH has them. I don't assume this will change your "who wants to contact . . . whatever that is" attitude, but thought you should know a little bit about the service you're judging.
Comment By: Kris Hall
Date & Time: June 21, 2010 at 11:49 am
Lee, thanks for taking the time to post your situation on Make Medicine Better.org. This site was created for our public to have a place to communicate with us, and appreciate feedback related to how we service our patients. This helps us to continue to seek ways in which we can improve our services.
At Barnes-Jewish Hospital we have patient advocates who are here to listen and respond to questions, comments or concerns about your hospital stay. I would encourage you to contact one of our patient advocates at 314-362-5196. By understanding how your experience fell short, we can make sure we take steps to improve the patient experience for everyone.